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Acromegaly Communities & Resources

Acromegaly communities and resources

If you or someone you care for has acromegaly, there are several groups and websites that may help. The links below are for your convenience. These websites are neither owned nor controlled by Pfizer. Pfizer does not endorse and is not responsible for the content or services of these sites.

Acromegaly Community

www.acromegalycommunity.org

This is a support network run by patients for people touched by acromegaly. It offers information on issues such as surgery, medication, radiation, and postdiagnosis support. In addition, it provides a network of emotional support for acromegaly patients, as well as their friends and family.

Hormone Health Network

www.hormone.org

This is the public education affiliate of The Endocrine Society. Its mission is to be a resource for the public by promoting the prevention, treatment, and cure of hormone-related conditions.

Pituitary Disorders Education & Support (PDES)

www.pituitarydisorder.net

This patient organization's website provides information on pituitary disorders, updates on treatment advances, and links to other pituitary and endocrinology organizations, neuroendocrine clinics, and related websites and message boards.

Pituitary Society

www.pituitarysociety.org

This website presents articles on pituitary diseases, information about International Pituitary Congress programs, the Pituitary Society Newsletter, and tables of contents from back issues of the Society's journal Pituitary.

Pituitary Network Association

https://pituitary.org

Founded by a group of patients with acromegaly, this is the website of an international nonprofit organization. The PNA is the world's largest patient advocacy organization for people with pituitary tumors and disorders.