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Living With Acromegaly

Living with acromegaly

Removing the tumor from the pituitary gland can help diminish acromegaly symptoms in many patients. But some still suffer from high insulin-like growth factor I (IGF-I) levels and continuing signs and symptoms, such as:

Joint pain

Sweating

Fatigue

Headaches

Increased
ring size

Swelling of hands,
feet, and face

Joint pain

Sweating

Fatigue

Headaches

Increased
ring size

Swelling of hands,
feet, and face

  • The longer patients live with uncontrolled acromegaly, the further physical changes continue. Some of these changes cannot be reversed
  • There are treatments that help control IGF-I levels and signs and symptoms of acromegaly
  • Once you are being treated, make sure you get regular blood tests, as ordered by your healthcare provider, to check your IGF-I levels
  • Remember to track your symptoms and discuss them with your doctor. Together you can determine if your current medication is working

Acromegaly is very rare—only 60 out of 1 million people have it—and this can make it difficult to explain to family and friends.

Consider downloading the Friends & Family Brochure, created to help patients with acromegaly explain this rare condition.

“After 2 surgeries, and a round of radiation, I continued to have elevated IGF-I levels. So my doctor recommended SOMAVERT.”

–Jenifer, a patient with acromegaly